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Recording: Down Syndrome Learning Styles

Alecia Talbott, Executive Director of DSAMT, parent of a child with DS
Once you understand the common learning types of individuals with Down syndrome, you can more easily help meet the needs of your child with DS and help them achieve their potential. We will discuss the more common strengths & weaknesses of those with DS, their learning styles or profiles and strategies for success.

$20.00

Recording:*Connecting Curriculum Through Accommodations and Modifications

*for educators but others welcome
Nicole Eredics B.Ed., Inclusion Specialist and author of teacher guidebook Inclusion in Action: Practical Strategies to Modify Your Curriculum
Educators can make curriculum accessible and achievable for students through the use of accommodations and modifications. In this session, Nicole Eredics will provide attendees with a solid understanding of accommodations and modifications, how they are used, and when. Furthermore, Nicole will also ensure that attendees leave with a "toolkit" of tips and strategies to help them make accommodations and modifications with ease!

$20.00

Top 5 Issues and Concerns During Puberty 4/30 @ 12 (NO recording available)

Thursday, April 30, 2020 at 12:00pm
NO RECORDING AVAILABLE FOR THIS WEBINAR!
Terri Couwenhoven, MS, AASECT certified sex educator, TC
Services, INC., Parent of an adult with DS
Families often experience anxiety when their son or daughter with intellectual disabilities begins to exhibit changes that occur during puberty. In this workshop, parents will learn about the most frequently identified issues and concerns of parents of tweens with I/DD and practical ways to address them. Visual tools, fun learning activities, and useful resources specifically designed for individuals with intellectual disabilities will be shared.

$20.00

Recording:*Including and Teaching Diverse Learners in the Classroom

*for educators but others welcome
Nicole Eredics B.Ed., Inclusion Specialist and author of teacher guidebook Inclusion in Action: Practical Strategies to Modify Your Curriculum
How can teachers create classroom environments that support and teach all kinds of students? In this session, attendees will learn the processes, supports, and materials needed to reach and teach diverse learners. Attendees will gain an understanding of inclusive practice, learn strategies for inclusion, how to adapt and modify classwork, get tips for creating an inclusive classroom community, as well as learn elements of inclusive classroom design.

$20.00

Making the Most of Tele-therapy, and At-Home Physical and Occupational Therapy Activities for Babies and Toddlers 5/5 @12

Tuesday, May 5, 2020 12:00 PM
Hosted by Down Syndrome Affiliates in Action not DSAMT
If you’re new to tele-therapy or have questions about how to get the most out of your child’s experience, join us for this webinar. Licensed PT and OT providers will also share exercises for babies and toddlers.

$0.00

Supporting Positive Behavior in Children and Teens with Down Syndrome: The respond but don’t react method 5/9 @ 9(NO recording)

Saturday, May 9, 2020 at 9:00am
NO RECORDING AVAILABLE FOR THIS WEBINAR!
David S. Stein, Psy.D., Pediatric Psychologist & Director. New England Neurodevelopment, LLC
Behavior problems impact 30% of children with Down syndrome. Left untreated, these same children often exhibit behavior problems as adults, limiting work and independent living opportunities. Many behavioral management tools are less effective for children with DS. This workshop will present the basic neuroscience of Down syndrome and how this informs effective behavior management, with practical strategies provided for use in the home and school settings from childhood through transition to adulthood.
OBJECTIVES
1. Participants will understand the basic brain profile in DS, in relation to behavior specifically.
2. Participants will learn behavior principles and strategies that are effective in DS.
3. Participants will understand the concepts of the neuroscience of DS and behavior management in DS in a manner that is flexible and can be applied to a wide variety of situations.

$20.00

NDSC House Call: a talk with the docs 5/11 @ 2:30

Mon, May 11, 2020 2:30 PM - 3:30 PM CDT
Hosted by NDSC not DSAMT
Doctors Kishore Vellody, Nicole Baumer, and Peter Bulova, each an expert in the Down syndrome field who will candidly answer your questions.

$0.00

Brain Train: Smart Actions That Might Boost Cognition and Prevent Alzheimer’s Disease In People With DS 5/12 @ 7pm (NO RECORDING

Tuesday, May 12, 2020 at 7:00pm
NO RECORDING AVAILABLE FOR THIS WEBINAR!
Brian Skotko, M.D., M.P.P., Emma Campbell Endowed Chair on Down Syndrome Director, Down Syndrome Program | Down Syndrome Research Program, Medical Geneticist, MassGeneral Hospital | Associate Professor, Harvard Medical School
Two of the most common, yet challenging, questions that Dr. Skotko is asked by caregivers: (1) How can you prevent Alzheimer’s disease in people with Down syndrome? (2) How might we boost their cognition? While exciting research is unfolding in laboratories across the world, there are strategies that caregivers can take right now in respect to these two questions. In this presentation, Dr. Skotko reveals his recommendations, which must meet all of the following criteria: (a) supported, in part, by quality science, (b) have practical applications for home, (c) be adaptable to people with Down syndrome, and (d) pose no risk to people with Down syndrome. This is not a presentation on how best to educate people with Down syndrome. This is not a presentation about supplements or nutraceuticals. Instead, Dr. Skotko provides a set of actions that caregivers can take that might improve the long-term wellness for their loved one with Down syndrome. Attendees will come away with immediate steps that can be implemented in their homes.

$20.00

Don’t Cross the Line! Understanding Boundary Confusion and what to do about when your teen has an I/DD 5/14 @ 12 (NO recording)

Thursday, May 14, 2020 at 12:00pm
NO RECORDING AVAILABLE FOR THIS WEBINAR!
Terri Couwenhoven, MS, AASECT certified sex educator, TC Services, INC., Parent of an adult with DS
As adults, having healthy boundaries is critical for safety and social appropriateness. For kids, teens, and adults with DS, they often struggle to understand these concepts. In this workshop Terri will identify reasons why learning about boundaries can be difficult for this population but also share strategies for teaching and learning.

$20.00

recording: Medical concerns for children, adolescents and young adults

George Capone, M.D., Director of the Down Syndrome Clinic & Research Center at the Kennedy Krieger Institute, and founding member of the DS Medical Interest Group-USA
Discussion of medical concerns for individuals with Down syndrome through the lifespan.

$20.00

*Universal Design Daily: Supporting All Students in the Diverse Classroom 5/18 @12p (NO RECORDING)

Monday, May 18, 2020 at 12:00pm *for educators but others welcome NO RECORDING AVAILABLE FOR THIS WEBINAR!
Paula Kluth, Ph.D a consultant, author of over 15 books, advocate, and independent scholar
It’s undoubtedly important to teach in ways that honor learning differences and to structure lessons that are engaging, varied, and appropriately challenging. However, in this era focused on universal design for all, it is also critical to explore the underlying habits of mind related to “teaching them all.” This presentation centers on big ideas related to teaching and learning and will explore the need to focus on serving ALL students through this model. This presentation contains video clips, classroom stories, examples, and illustrations. It will provide both points of reflection and practical strategies. More importantly, it features ideas to help all teachers better respond to the diversity that exists in their classrooms every single day.

$20.00

What Your Other Children Without Down Syndrome Are Thinking: Sibling Issues For Parents 5/19 @7p

Tuesday, May 19, 2020 at 7:00pm (NO RECORDING)
Brian Skotko, M.D., M.P.P., Emma Campbell Endowed Chair on Down Syndrome Director, Down Syndrome Program | Down Syndrome Research Program, Medical Geneticist, MassGeneral Hospital | Associate Professor, Harvard Medical School and Susan Levine, MA, CSW, co-founder and social worker at Family Resource Associates, Inc., co-authored the book, Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters.
Through a series of interactive exercises, parents will explore what questions, needs, and concerns are often raised by children who have a brother or sister with Down syndrome. Parents will come away with practical answers to commonly raised questions. This presentation draws upon Brian Skotko and Sue Levine’s publication in American Journal of Medical Genetics and their new book, Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters.

$20.00

Recording: DS/ASD common concerns- development, learning, behavior and sleep

George Capone, M.D., Director of the Down Syndrome Clinic & Research Center at the Kennedy Krieger Institute, and founding member of the DS Medical Interest Group-USA
It is recognized that children with DS and Autism Spectrum Disorder (ASD) have especially complex needs because of the constellation of medical-developmental-behavioral challenges they face. This session will describe common concerns in relation to development, learning, behavior and sleep.

$20.00

Recording: What Families Need to Know: GLOBAL Medical Care Guidelines for Adults with Down syndrome

In this webinar, Global Director of Adult Initiatives & Special Projects, and guideline co-author, Bryn Gelaro, will present on Global Medical Care Guidelines for Adults with Down Syndrome. The guidelines will provide the first set of evidence-based, updated recommendations to families, self-advocates and medical providers. To author the guidelines, Global recruited 11 medical experts representing many of the foremost adult Down syndrome Clinics in the U.S. This first iteration of guidelines covers 9 topic areas chosen by the authors and deemed critically important for the health and well-being of adults with Down syndrome. This presentation will cover the guideline creation process, the medical questions included in the guidelines as well as what is not included, and what we hope to cover in the future. We will discuss an updated timeline for the release of the guidelines and how families/patients can receive, access and follow the guidelines. We look forward to sharing our progress and to providing a sneak peek with you!

$20.00

Recording: Advocating for School Age Children 5/28 @ 12p

Alecia Talbott DSAMT Executive Director, parent of a child with DS and Erin Richardson, DSAMT policy and Advocacy director
Learn how to be a better advocate for your child with special needs. Attendees will learn how to best prepare for IEP meetings, when to use an advocate and how they can help, and how to successfully advocate yourself. There will be plenty of time allowed for questions & answers.

$20.00

recording: Planning for the future of your loved one with special needs

Matt Moser of Capital Wealth Advisors and Cindy Gardner, Special Needs Law Center, Maurer & Gardner, PLLC Sheila Moore, Chief Executive Officer, The Arc Davidson County and Greater Nashville, and Parent of an adult with DS
Information to help you understand how the family is protected if something happens to the primary care person today, preparing to maximize government benefits, and how your child will be taken care of when you can no longer care for them. Issues discussed will include taking advantage of government benefits and protecting your child’s eligibility, estate planning (wills, powers of attorney, and conservatorships), Special needs trusts and funding options, A new life insurance policy available to individuals with down syndrome, and Letters of intent.

$20.00

Teens with Down syndrome: Managing changes in mood and behavior during times of transition 5/30 @9 (NO RECORDING)

Saturday, May 30, 2020 9:00am NO RECORDING AVAILABLE FOR THIS WEBINAR!
David S. Stein, Psy.D., Pediatric Psychologist & Director. New England Neurodevelopment, LLC
Behavior problems impact 30% of children with Down syndrome. Left untreated, these same children often exhibit behavior problems as adults, limiting work and independent living opportunities. Childhood behaviors usually include acting out. As children with DS enter adolescence, however, they often begin to exhibit “acting in,” or social withdrawal and increased anxiety and mood challenges. This workshop will outline these difficulties using a case example and review strategies to support individuals with DS as they mature.

$20.00

Recording: Using Social Stories to Support Individuals with DS, Autism and other Visual Learners

Alecia Talbott, Executive Director of DSAMT and Babs Tierno Executive Director of Autism Tennessee
Social stories are a tool to help provide directions and examples of appropriate ways to respond to social situations and can be used with individuals of any age. Social stories illustrate expectations, build skills such as coping and emotional regulation and effective ones are a clear example of expected/desired behaviors.

Babs Tierno, executive director of Autism TN, and Alecia Talbott, executive director of DSAMT, will teach attendees how create effective social stories that teach expectations and appropriate behaviors, set individuals up for success to learn, and reduce fears/anxiety with new or difficult situations. They will share resources on how to make these more easily.

$20.00

Recording:Tele-therapy Guide and Home Activities for Parents (ST and OT)

This event is hosted by DSAIA NOT DSAMT
Summer is here and many therapists will continue to offer tele-therapy while in-person visits are on hold. In this webinar, Therapy 2000's Macey Ciment and Ashley Jones will show you how to make the most of your virtual occupational and speech therapy time and add some new activity ideas to make therapy fun and engaging.

$0.00

Intelligent Lives: Then and Now, Screening and Reunion 6/10 @ 12

Wednesday, June 10, 2020 -1:00-3:00 PM ET or 12:00-2:00CT
Hosted by Intelligent Lives NOT DSAMT - Limited space available
Join a panel of film “stars” for this FREE, public webinar event: “INTELLIGENT LIVES: An Online Reunion & Screening Event.” Wednesday, June 10, 2020 -1:00-3:00 PM ET. See Dan Habib’s 70-minute film INTELLIGENT LIVES via a Zoom screening with live chat. Then Dan will facilitate an unscripted discussion with Executive Producers Chris Cooper and Marianne Leone Cooper, plus film stars Micah and Emma Fialka-Feldman, Naieer Shaheed and his principal Patricia Lampron, and Steve and Naomie Monplaisir.

INTELLIGENT LIVES stars three pioneering young American adults with intellectual disabilities Micah, Naieer, and Naomie who challenge perceptions of intelligence as they navigate high school, college, and the workforce. Academy Award-winning actor and narrator Chris Cooper contextualizes the lives of these central characters through the emotional personal story of his son Jesse, as the film unpacks the shameful and ongoing track record of intelligence testing in the U.S.

$0.00

ABLE Accounts: Is It Right for My Family Member? 6/10@12

This event is hosted by DSAIA NOT DSAMT
Wed, Jun 10, 2020 12:00 PM - 1:00 PM CDT
Join Florida-based estate planning attorney Erik Shuman as he gives you the 411 on ABLE accounts, the tax-advantaged savings accounts for people with Down syndrome and other disabilities. Erik practices in the areas of estate planning, guardianship, trusts and estates, elder law, and Medicaid planning in the firm’s Melbourne, Orlando, and Boca Raton offices.

$0.00

RECORDING: Tackling Tough Transitions: Strategies to Support Youth through Difficult Transitions and Daily Routines

recording: Alacia Stainbrook, Ph.D., BCBA-D, LBA, Associate Director, Treatment and Research Institute for Autism Spectrum Disorders (TRIAD), Vanderbilt Kennedy Center, Vanderbilt University Medical Center

Transitioning from one activity to another can be tough, especially when the transition is from a preferred task to a difficult or non-preferred task. This webinar will focus on strategies to support successful transitions between daily routines and activities. We will discuss evidence-based strategies for preventing challenging behaviors within transitions. We will also share therapeutic reactive strategies for responding to challenging behaviors that may occur during the transition itself or the non- preferred activity that follows.

$20.00

Drop the Mic: Music Therapy Tips for At Home 7/17 @ 10A

This event is hosted by DSAIA NOT DSAMT
Fri, Jul 17, 2020 10:00 AM - 11:00 AM CDT
Join Board-Certified Music Therapist Courtney Arndt with the Music Intervention Center as she shares how music therapy can benefit individuals with Down syndrome of all ages and practical, every-day strategies you can use at home.

$0.00
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The 2020 Extraordinary Lives Virtual Conference is in partnership with Gigi's Playhouse Nashville, Clarksville Association Down Syndrome, Down Syndrome Awareness Group of East TN, Autism TN, and Friends Tri-cities and made possible in part from grants provided by Global Down Syndrome Foundation and TN Council on Developmental Disabilities.

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